I'm still a mystery...but at least I'm cute!!!
Sunday, March 14, 2010 at 9:11 
You're digging my smile aren't you?Well, in keeping with my modus operandi, the doctors are debating about which course of treatment is best for me. My lead neurologist still feels that she sees a lesion on my brain and wants to move forward with the second surgery. That means another craniotomy, putting EEG leads directly on my brain, and trying localize the seizure foci so that it can be resected or surgically removed.
This is a big deal. I've been through monitoring so many times now that it's pretty routine for me, but this next procedure is a big deal. I will have part of skull removed and electrodes placed directly on my brain. Then, my skull will be put back in place (temporarily) and I'll spend the next 7-10 days in the ICU while the doctors monitor my EEG. Putting leads directly on the brain allows the doctors to see a clearer picture of what is going on without interference from the scalp, hair, or skull. If the doctors can find the spot that is causing the seizures, they'll go in and take the electrodes off my brain and resect, or cut out, the part of the brain that is suspected to be causing my seizures. Right now the doctors are speculating that it's about a lemon size section in the right frontal lobe that is the culprit.
My case has been presented at a conference and the many leading neurologists and neurosurgeons have come to the consensus that this is best course of treatment. Now Mom, Dad, and me need to decide if we're ready for a 20-30 day hospital stay and are OK with the inherent risks that come with a procedure of this magnitude.
Stay tuned for more updates. We'll go to Birmingham on 22 March for a clinic visit and discuss all of my options.
Reader Comments (2)
Xavier, You are so unique and precious. We will pray very hard for you and your parents.
Who knows what you future holds. We will trust in our Creator and those doctors in your path that HE has sent to you. We love you so much and stand by you and your family in every way. We will be there for you and your sisters too in Birmingham or Columbus whereever or whenever we are needed. Lots of hugs and kisses....
Ill pray for you, dear Xavier..shall pray very hard..