Silence is Golden....
Monday, July 26, 2010 at 21:22 My parents could really use some help on this mystery. Do you have experience with other children with special needs that do this? Please leave a comment or suggestion...
Xavier Snipes
I've received a lot of great feedback. I will let everyone know what my neuro-surgeon has to add after we meet with him tomorrow. My parents have made a few changes to my daily plan and I've been playing in the pool more this week. I've been more quiet but I'm still very loud.
Also, we've asked my OT, SLP and PT what they think and they all have offered suggestions but nothing has really worked.
Thanks for all the help!!!
Xavier Snipes
Well after conferencing with our neurologist and family practitioner the doctors have decided to me on Adderall XR 5mg. Today is my first dose and so far, I've been much quiter and more focused. We'll see what happens although I will have to come off this medication during my stay at the hospital.
Reader Comments (5)
The week we had Xavier for camp everytime he would start screaming we would get him up and walk with him. He loved walking up the hill and walking out on the porch. He would stand at the table outside and hold on and look out at the trees. I believe he is trying to communicate something, but who knows. All I know, is that he stopped screaming when he put that energy to physical work like walking. He loved standing at the sink in the kitchen too and playing in the water in the sink. It was fun for him. I put toys in the water and he would stand there for quite a while just playing in the water. I guess I forgot to share these things with you, but better late than never. He also could stand at the island and look around. Hope these ideas help. Sorry for not getting this to you sooner. Love, blessings and prayers as the Big Day approaches...
Any OT will tell you that it is hard to make a judgement based on only a few minutes of video, but I am happy to provide you with a few basic things that immediately come to mind when I watch Xavier. I notice that in addition to the "squealing" he tends to rock or move, continues to rub the textured toys around in his hands, touches the toys to his mouth, bites and chews on the toys. Looks like he may be sensory seeking and the noise making could be a way for him to also acquire auditory stimulation in addition to vestibular, proprioception, and tactile stimuli that he is getting from the other behaviors I described. Have you asked your doctors about OT or are you seeing an OT who is experienced with sensory processing? By no means can I make recommendations without actually seeing and evaluating Xavier myself, but feel free to contact me via my personal email and I can see what general suggestions I might be able to make;)
Tiffany
Dr. Showalter,
I cannot find your email. Are you a member of another Special Needs site e.g., SupportForSpecialNeeds.com or BrainTalk?
Hey Chris & Amber -
What did the neurosurgeon have to say about the behavior? It's reminiscent of when one of my kids would make loud squealing/screeching dinosaur noises as they were learning more about their own voices as babies. He seems to be content when he's doing this, are you concerned or think it could be tied to something happening neurologically?
Shannon,
It's not so much a concern. It's more a question of why does he do this for hours upon hours. His volume reaches a level that makes our ears hurt. He's usually very happy when he's doing this and doesn't appear to be bored or in pain.
Everyone pretty much agrees that is not neurological but rather behavioral.