Xavier's Journal - Commentshttp://www.xaviersjourney.org/blog/en-USSquarespace Site Server v5.11.5 (http://www.squarespace.com/)Xavier comments on Silence is Golden....XavierWed, 28 Jul 2010 22:56:36 +0000http://www.xaviersjourney.org/blog/2010/7/26/silence-is-golden.html#comments365894:3924438:comment/9156462Dr. Showalter,

I cannot find your email. Are you a member of another Special Needs site e.g., SupportForSpecialNeeds.com or BrainTalk?

]]>Dr. Tiffany G. Showalter, OTD, OTR/L comments on Silence is Golden....Dr. Tiffany G. Showalter, OTD, OTR/LWed, 28 Jul 2010 12:05:38 +0000http://www.xaviersjourney.org/blog/2010/7/26/silence-is-golden.html#comments365894:3924438:comment/9152480Any OT will tell you that it is hard to make a judgement based on only a few minutes of video, but I am happy to provide you with a few basic things that immediately come to mind when I watch Xavier. I notice that in addition to the "squealing" he tends to rock or move, continues to rub the textured toys around in his hands, touches the toys to his mouth, bites and chews on the toys. Looks like he may be sensory seeking and the noise making could be a way for him to also acquire auditory stimulation in addition to vestibular, proprioception, and tactile stimuli that he is getting from the other behaviors I described. Have you asked your doctors about OT or are you seeing an OT who is experienced with sensory processing? By no means can I make recommendations without actually seeing and evaluating Xavier myself, but feel free to contact me via my personal email and I can see what general suggestions I might be able to make;)
Tiffany

]]>Grandmom Micki comments on When it's 100 degrees outside...Grandmom MickiTue, 27 Jul 2010 12:33:03 +0000http://www.xaviersjourney.org/blog/2010/7/24/when-its-100-degrees-outside.html#comments365894:3924438:comment/9136912What little fisheeees! So much fun to watch. MaryLiz shows her physical prowess once more! Nice to see you all together in such a fun environment....cool!

]]>Grandmom Micki comments on Silence is Golden....Grandmom MickiTue, 27 Jul 2010 05:29:24 +0000http://www.xaviersjourney.org/blog/2010/7/26/silence-is-golden.html#comments365894:3924438:comment/9134904The week we had Xavier for camp everytime he would start screaming we would get him up and walk with him. He loved walking up the hill and walking out on the porch. He would stand at the table outside and hold on and look out at the trees. I believe he is trying to communicate something, but who knows. All I know, is that he stopped screaming when he put that energy to physical work like walking. He loved standing at the sink in the kitchen too and playing in the water in the sink. It was fun for him. I put toys in the water and he would stand there for quite a while just playing in the water. I guess I forgot to share these things with you, but better late than never. He also could stand at the island and look around. Hope these ideas help. Sorry for not getting this to you sooner. Love, blessings and prayers as the Big Day approaches...

]]>Grandmom Micki comments on So far this Summer...Grandmom MickiTue, 27 Jul 2010 05:20:38 +0000http://www.xaviersjourney.org/blog/2010/7/15/so-far-this-summer.html#comments365894:3924438:comment/9134867If you could talk Xaiver, I know this is what you would say:
Fun times at Camp with lots of good memories walking miles with Grandmom. I felt like such a big boy hiking (in my jogstrooler) and being part of a week of challenges. Can't wait for next year!
I loved being with my cousin, Harrison and my sister MaryLiz. They were great and helpful to Grandmom and Pop Pop too!
This year Mocha (the camp mascot) let me crawl and use him to stand up. I just love Mocha!

]]>IEP Goals comments on Budget Shortfalls are Affecting Summer School ProgramsIEP GoalsFri, 04 Jun 2010 07:08:30 +0000http://www.xaviersjourney.org/blog/2009/7/2/budget-shortfalls-are-affecting-summer-school-programs.html#comments365894:3924438:comment/8614426Thanks for providing such an informative blkog..really i need that..
Looking for an easy to use website for finding IEP Goals? Please visit our site.
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IEP Goals

]]>Oblibiahizhaf comments on Young Girl in western North Carolina Struggles with EpilepsyOblibiahizhafSun, 02 May 2010 11:23:54 +0000http://www.xaviersjourney.org/blog/2009/6/28/young-girl-in-western-north-carolina-struggles-with-epilepsy.html#comments365894:3924438:comment/8245774I also have the website that relate to Heart attack. Anyway, visit me for sometime!!
Thanks!! for the good articles.^_^
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]]>Grandmom Micki comments on The verdict is in...Grandmom MickiTue, 23 Mar 2010 15:46:33 +0000http://www.xaviersjourney.org/blog/2010/3/22/the-verdict-is-in.html#comments365894:3924438:comment/7839100Xavier, What an eloquent explaination of your life trials! It has been a very long journey and one that has required much love and support from everyone. Through the grace of God and continued support will you be triumpant and may you continue to inspire more love than anyone else I have ever incountered in my life. May your spirit of 'love' incarnate bring joy and an increase in faith to all those you encounter. God works in mysterious ways and we trust in HIS love for you and ask continued blessings for you, your family and the medical team who will be caring for you as you continue on this journey of hope.......

]]>Rob comments on I'm still a mystery...but at least I'm cute!!!RobSat, 20 Mar 2010 17:14:03 +0000http://www.xaviersjourney.org/blog/2010/3/14/im-still-a-mysterybut-at-least-im-cute.html#comments365894:3924438:comment/7815711Ill pray for you, dear Xavier..shall pray very hard..

]]>Grandmom Micki comments on I'm still a mystery...but at least I'm cute!!!Grandmom MickiSun, 14 Mar 2010 21:11:02 +0000http://www.xaviersjourney.org/blog/2010/3/14/im-still-a-mysterybut-at-least-im-cute.html#comments365894:3924438:comment/7759995Xavier, You are so unique and precious. We will pray very hard for you and your parents.
Who knows what you future holds. We will trust in our Creator and those doctors in your path that HE has sent to you. We love you so much and stand by you and your family in every way. We will be there for you and your sisters too in Birmingham or Columbus whereever or whenever we are needed. Lots of hugs and kisses....

]]>Claudia Broome | Inspiring Disabled Children comments on Who's to say what a disability is?Claudia Broome | Inspiring Disabled ChildrenMon, 08 Mar 2010 17:54:27 +0000http://www.xaviersjourney.org/blog/2009/10/4/whos-to-say-what-a-disability-is.html#comments365894:3924438:comment/7711552Nick is an amazing example of people who believe they can and so they can. Our website is all about offering motivation to special needs kids. http://guesswhat.rugbyjones.com/

The website began as an off spring of our book The "Tail" of Rugby Jones: A Rascal's Journey from Disability to Ability. The more of us who believe that special needs kids can will increase the number of special needs kids who can.

I am so happy to have found your site. We are so on the same page!

]]>Grandmom Micki comments on 2009...what a year!Grandmom MickiWed, 30 Dec 2009 02:35:24 +0000http://www.xaviersjourney.org/blog/2009/12/29/2009what-a-year.html#comments365894:3924438:comment/6688738Xavier, You continue to bring joy and excitement to our world. The Lord has blessed us with your presence in our lives and we will be forever changed. Nothing is impossible with God and hope reigns eternal for your future and that of your precious family. Blessings to you and your awesome parents who have been the light to many in their trials of children with disabilites. I cannot wait to see what 2010 is going to be like. We love you always and are you lucky to have two sisters who absolutely adore you!

]]>Rob comments on 2009...what a year!RobWed, 30 Dec 2009 01:38:55 +0000http://www.xaviersjourney.org/blog/2009/12/29/2009what-a-year.html#comments365894:3924438:comment/6687348Go Xavier!!! Your story is incredible, and a joy to read..and i have to agree your baby sister is the cutest thing ever! I'm a 26 year old male on the autism spectrum struggling to make my own dreams a reality.. becoming a social worker to help fellow auties and aspies reach their own potential or to just help them give the tools to live day to day life... my blog is http://ppd-nossocmajor.blogspot.com/ I am a fellow Catholic, and i can tell you faith is everything when living with a disability, developmental or otherwise... peace out !

Rob

]]>The Andersons comments on 2009 St Jude's MarathonThe AndersonsWed, 09 Dec 2009 03:47:18 +0000http://www.xaviersjourney.org/blog/2009/12/7/2009-st-judes-marathon.html#comments365894:3924438:comment/6557232You guys are such great parents. Xavier is so lucky to have you. You set such a high bar.

]]>Aunt Pam comments on 2009 St Jude's MarathonAunt PamTue, 08 Dec 2009 23:30:44 +0000http://www.xaviersjourney.org/blog/2009/12/7/2009-st-judes-marathon.html#comments365894:3924438:comment/6556140Great job guys, we are so proud of you! How awesome that you were provided with the stroller, now Xavier can start training with you!

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