Love and miss you, Xavier. I know you are sleeping without seizures at night and so thankful you can finally rest even during the day. I bet you are happy to be home with your family and Nik-Nik! Can't wait to see you when your new baby brother or sister arrives. I keep praying and thanking God for all those who prayed for you and continue to pray for your recovery. Hugs and kisses to my sweet 'special boy'. See you soon!

Thought I was the only one having to do all those surgeries at such a young age. Mine started at 5. But they basically were the same. Some of the procedures were different cause they didnt' have the knowledge that they have now. But they were basically the same THANKS FOR SHARING.!!!!!!!!!!!!!!!!! I love ur strength.

Xavier.... Thinking of you. Love ya lots ;)
Can't wait for our next kiss.

Stay strong and have faith that you will overcome what ails you. Faith can work miracles.

Debbie shared this with me. This site is amazing. What a beautiful boy. His story is amazing. You are amazing parents. You inspire me to be a better mom. Looking forward to seeing you at Abby's wedding. Love, Michelle Cash

my prayers and love to all of you

Hey you guys....I was so happy to see all of you. Nothing happens by chance, all things work together and God knows the desires of our hearts. I guess I wanted to see you more than I thought. Its nice to know I can keep up with all of you. You'll be in my thoughts and prayers. Love to you all.
Debbie Nickerson Franklin

We have been so blessed to have so many prayers for you, Xavier! I am so happy that I was at your house when you learned to say, "Mama" for the first time! God is so good and showing us that miracles are possible and that our faith and love for you will prevail.
I know the seizures are still going on, but they are less in duration. We need to know that in order to accept further surgeries and trust that our Lord is showing us how to be patient and trusting throughout this whole ordeal. Friends and family love you so much and I can't wait for you to witness the power of God through your complete cure! Praise God for the grace to accept things now and hope always for the future. I love you more than ICE CREAM!

Xavier:
Glad to see that your father is moving well and running again. Sorry I am not there to help you guys train for the big race. You could not be in better hands. Please know that even though we have moved on Sandra, Daniel and myself are still on your side pulling for success. Keep pushing for results guys. And I am always a call away for any help you may need...even when you are afraid to ask.
Good luck to you.. THE PARTREA FAMILY

Even though I didn't get to see Xavier and he family when he was in Birmingham for his surgery, I spent a few minutes with his grandmother, Sandy, a wonderful friend of mine. I am delighted that she gave me the address for this fabulous site. You have done a wonderful job with it, and I'm in awe that you have the time. What a beautiful family you have! Love, Sharon

You are an inspiration on "just keeping on keeping on". I loved the Sarah Palin piece. Thanks, for telling it like it is. I anxiously await your visit to Dr Lunnen's class.

Great site to keep up with the champ! Thanks Aunt Mick for sharing this with me......Hope you are feeling well, Xavier....... Love Nick, Lisa, Gracie Lyn-Asoa, Cecilia Anne and Duma

My thoughts and prayers are with Xavier and his whole family. Chris and Amber, you are very strong and loving people and I know God is on your side. It has been an honor to meet you and know of you. I am Grandma Claire's daughter. I met you at Xavier's birthday party a couple of years ago, and it was awesome to see the love you share as a family. The site is wonderful, you've done a great job. Stay strong, keep the faith, be safe and be happy. Love, Debbie

I just want to say your in our thoughts and prayers, my husband and i have two small boys and i could not imagine all that you and your family have gone through. From what i have heard from alice you have a wonderful faith in God and in family. Those are two of the most important factors for a good outcome. keep up the strenght to fight, and remember you have others praying with you through this time. Karen

Praying for you guys, what a special journey you have been given--God bless you all and thank you so much for the updates, we watch it everyday.

the tastinger crew

Amber and Chris,
God gave you this important task because of the amazing people that you are. I'm proud to call you my friends. Keep the faith, and know that there are SO many people out there praying for you, your family, and most importantly, Xavier.
God Bless,
Colleen

A great way to keep updated, my prayers are with you Xavier as well as your entire
family. Keep the faith, the one above can always do great things. Rudy and Micki you know
that I am with you all the way and just wish I could be there to try and help in some way.
Please try to get some rest, this is a very special little boy and we all love and pray for him.
Please keep me posted as to how he does with this.

Love your special friend and Rotarian Sarah

My prayers are with you buddie. I love you so much and I can't wait for the procedures to be completed. You are a very special individual and always will be. I miss you and hope to see you soon.
Love you tons!!!

Continually checking for updates, said a special prayer for Xavier, things will be good. We love you!!

Chris, Amber, Xavier, Mary E. and Lucy- Just dropping by to click a few ads and watch some Snipes TV. Here's a hug from my 4 and 5 year old, the 11 month old doesn't hug so much but pulls hair...

Tell Forest and Colonel we said hi, too. We're anxiously awaiting some news :-)

hey sorry we missed the birthday bash but we were thinking of you little man....stay strong and brave like always.....we think and pray for you all often....donna

WE have already been praying for you guys, especially Xavier. God bless and know that God is with you ALL.

Love, Julie

Thank you for keeping us updated about Xavier. Our prayers are always with you all and Xavier! Please let me know if I could be of any assistance!

Zack Hussain

I know it has been a while but know that we are thinking about you! I love the website. It is such a great way for long distance folks to keep up with you guys. Stay strong and trust your decisions. You guys know what is best for YOUR family.

As I was walking through downtown Independence, Kansas this afternoon, I saw something in the window of the print shop I was going to. The sign said:
Disability is not a "brave struggle" or "courage in the face of adversity"...disability is an art. It's an ingenious way to live. Neil Marcus 1993

I read it twice and knew it was something I should share with the rest of the family!